“All you need is love,” sang the Beatles many decades ago. It’s a song still sung today. And for good reason. The tune is catchy, and the message is hopeful: “There’s nothing you can do that can’t be done.”
Were it that simple. Love, after all, is our greatest joy. But it can also be complex and complicated. Loving someone “for better or worse, in sickness and in health,” means taking the good with the bad. And that’s not always easy.
Many—if not most—of us will have to take care of the person we love during an illness. It might be for a day, a week or even longer. Some may find it a daunting challenge. For me, it’s a call to action.
Over the past two and a half decades, my husband has been hospitalized many times. Often, it’s involved life-threatening illness with long periods of hospitalization and recuperation. In times like that, I do everything in my power to help him get better. Love is the starting point for advocacy.
Along the way, I have learned a lot about the hospital setting and the very real impact that families can have in making sure their loved ones get the best care. Hospitals are bureaucratic and scary places. For patients and their families, it can feel like being tourists lost in a strange land, not knowing the customs, the language or the culture.
Patients are weak and flat on their backs. They are usually in no position to advocate for themselves. Doctors are busy, rushing from one patient to the next; nurses are stretched, trying to meet the many needs of their patients.
Families can make a difference. They can represent the patient’s wishes and needs when their loved one is unable to speak for him or herself. Knowing the patient better than anyone else in the hospital counts for a lot when navigating the impersonal environment of a hospital setting. Families—working as members of the care team—can also connect the dots because doctors, quite honestly, don’t always communicate well with one another.
Families can fill in the blanks when the sick patient doesn’t fully comprehend everything being said or is not able to remember it later. They also can bring information, perspective and insight that patients may forget or are uncomfortable sharing themselves.
And when the patient goes home, continued care must involve the family to ensure instructions are followed regarding medication, doctor visits, exercise, restrictions, and more.
Much is written about patient-centered medicine. But research shows that patient and family-centered medicine provides the best clinical outcomes, increases patient satisfaction, lowers costs, reduces risks of readmission and can even save lives.
Families can and do make a real difference. They start with love and build from there. There’s one more line from the Beatle’s song that applies here: [There’s] … “no one you can save that can't be saved.”
The one you help save just may be the one you love most.
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Bonnie Friedman is author of Hospital Warrior: How to Get the Best Care for Your Loved One and host of the podcast Hospital Warrior: Advocates and Experts on the Whole Care Network.
